AAA Annual Meeting Program

AAA Annual Meeting Program Details


View Session Details
Paper Information:
Type: Paper
Paper Title: BIOLOGICAL FUTURES AND THE BALANCE OF HEALTH AND 'CRISIS' FOR SICKLE CELL DISEASE POLITICS IN SENEGAL
Author: DUANA FULLWILEY (Harvard University)   
Date/Time: Fri., 2:45 PM
Co-Author(s): DUANA FULLWILEY (Harvard University) 
Abstract: In 2004 a handful of mostly young, unemployed, Senegalese with sickle cell ‘in their shared blood’ formed a patient advocacy group to lobby their state for subsidies to treat this genetic disorder. The resultant Association Sénégalaise de lutte contra la Drépanocytose (ASD), and the highly trained scientists they enlisted, cited state neglect and the biopolitical need for attention to Senegal’s public health future as motivations for their mobilization. This paper begins by explaining how these actors went beyond the state and brought the macrocontext of development and humanitarian priorities for Africa to bear on questions of sickle cell global citizenship and disease belonging as they persuaded the UN to make sickle cell, and its hallmark “pain crises,” a global health priority. Yet with this work done, new crises have emerged that now block some advocates from going forward in the face of a contemporary push by politicians that ASD’s health message should be: ‘avoid marrying someone with sickle cell trait.’ Of consequence is that the biopolitical reality of intimacy, itself deepened among sicklers during their political work, leaves many stymied about ‘devaluing’ their own biology and that of their newfound loved ones. Here ‘value’ spans ethical and economic registers. Drawing upon multiple representational strategies, including Islamic theo-logics played against the techno-logical limits of current sickle cell science, certain ASD members have entertained reproductive futures with other sicklers only to face negotiating public health prevention models and the (im)possibility of creating their own biological legacies in the form of family.

Program Number: 3-0785
Session Title: AFRICAN FUTURES IN CRISIS
Session Sponsor: Co-Sponsored by Society for Cultural Anthropology and Society for Cultural Anthropology
Session Date/Time: Fri., 1:45 PM-5:30 PM
Organizer(s): BRIAN GOLDSTONE (Duke University) 
Chair(s): CHARLES PIOT (Duke University)  
View Session Details


Schedule-at-a-Glance

If you have any questions about the program, please contact the AAA Meetings Department at aaameetings@aaanet.org.